CONGRESS OF DISABLE PERSONS' AGAINST EXPLOITATION
PRESENTS
AN EXCERPT FROM
THE OLMSTEAD CHRONICLES

A WEEK WITHOUT A PA
BY
DR. THUNDER
EDITED BY
CARMEN CUCINOTTA

 

DATE:7/16/01

I discovered that my PA (Personal Assistant), MS. X, changed her hours on her time sheet after I signed it. She took the time sheet to the ORS office herself, leaving me with just a copy. I told ORS and the PA union. When I asked her why she did it, she said that she didn't know what I was taking about.

After at 9pm mother informed me that she was missing more then $800 from her closet, and that my PA (or her daughter who came with her yesterday) was the only ones who could have taken the money. She called my brother to ask what she should do, and if she should let my PA in the house. I don't know what my brother told her (I overheard him asking my mother when she counted her money last, and why she would keep so much at home). Mother told me that Ms X would not be allowed in HER HOUSE to help me, and that she would not allow any PA in HER house. I told her that my father left me half the house before he died. She said that she would fight me, and my devil friends, and that she will give the house to my brother and throw me out.

DATE :7/17/01

My PA, Ms. X, never came to help me. I asked mother if she called the police about her money. She said no, but she would call other people. I didn't know what she was meant by that.

DATE:7/18-7/19/01

I had no PA in the morning or evening. My morning PA found another job, and my evening PA, Ms. X never came or called. I talked to Ms, Ml, Head of Olmstead about my problem. She said she would talk to my Office of Rehabilitation counselor and have him find me a new PA (or ask a PA agency to find one). I called the PA union (Local 880) to ask them to find me a PA. My councilor called asking if I found a PA. I asked if he knew of any, but the ones he knew only spoke Spanish. He said that he would call DOG, a homemaker provider under contract by DHS (which I used before and found them making up their own rules, without a regard as to the importance of PA work).

DATE:7/20/01

I called ORS Councilor twice to ask if he found a PA. He said yes, and they would start on 7/21/00 at noon (if there were any changes, he would call). Mother told me that my brother is going on vacation, and that she asked him to help her give me a bath. She then said, "However, if I knew that I would have a PA the next day, then I would tell your brother not to help you". I told mother that I didn't hear from my brother, and that as far as I was concerned, he was a Judas trying to take you my house out of my name. Besides on 5/26/00 when I asked my brother to plug in my wheelchair to the battery charger, he blew up in my face and told me that he would not take my shit any more). Besides h is helping you take my house from me, and put me in a nursing home to die like my Bruce (see story  AS I LAY ). Mother said that she will take the house away from me and my devil friends, or she will die trying.

DATE:7/21/01

My PA never came, and mother said she will not help me anymore and throw me out my house. She said that I will see what she can do.  She said that she would die before she would allow me and my devil friends take HER house after she died. She said that I could hire as many attorneys I want, but she will show her power. I told her that she will only hurt the Olmstead decision and hurt others from obtaining a PA in their own home, especially my brother's daughter who at 21 years of age has skin cancer. Mother told me that I wish evil on my family. I told her that I didnít give my niece skin cancer. I thought about my friend, who told me once that there was no love in my mother.
 

NOTE:  these excerrpts are written so readers will be more informed on why the OLMSTEAD decision is vital to disabled persons'.
 
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